tag:blogger.com,1999:blog-86030194920489597392024-03-14T03:44:18.334-07:00Adventures in the EclecticI am blessed every day by the opportunity to raise my son who has Down syndrome. He brings so much joy and adventure to my life... reminding me of the value of a smile, a sweet embrace and laughter like sunshine.SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.comBlogger60125tag:blogger.com,1999:blog-8603019492048959739.post-42153678415302848742013-12-20T08:24:00.000-08:002013-12-20T08:24:06.715-08:00Aladdin… A whole new world.<!--[if gte mso 9]><xml>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMw18fRsRPeGo_5oz48VuEwsWlgOghcImSUTTonRgExG-0R11O_RRiErjzkDr1ITX1tmujVr6-VsBGTTr9oHUfAu8MrEU7h2Gn-TNV3XXtDUNgHSi24zcSNkbuXRbOOMbmg3QpwWahQXi9/s1600/Aladin.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="260" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMw18fRsRPeGo_5oz48VuEwsWlgOghcImSUTTonRgExG-0R11O_RRiErjzkDr1ITX1tmujVr6-VsBGTTr9oHUfAu8MrEU7h2Gn-TNV3XXtDUNgHSi24zcSNkbuXRbOOMbmg3QpwWahQXi9/s400/Aladin.jpg" width="400" /></a></div>
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For a long time the theme song to Aladdin has had a special
significance to me.<span style="mso-spacerun: yes;"> </span>Here are the lyrics:</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I can show you the world<br />
Shining, shimmering, splendid<br />
<b>Tell me, princess, now when did<br />
You last let your heart decide?</b><br />
<br />
I can open your eyes<br />
Take you wonder by wonder<br />
Over, sideways and under<br />
On a magic carpet ride<br />
<br />
A whole new world<br />
A new fantastic point of view<br />
No one to tell us no<br />
Or where to go<br />
Or say we're only dreaming<br />
<br />
A whole new world<br />
A dazzling place I never knew<br />
But when I'm way up here<br />
It's crystal clear<br />
That now I'm in a whole new world with you<br />
Now I'm in a whole new world with you<br />
<br />
Unbelievable sights<br />
<b>Indescribable feeling</b><br />
Soaring, tumbling, freewheeling<br />
Through an endless diamond sky<br />
<br />
A whole new world<br />
Don't you dare close your eyes<br />
A hundred thousand things to see<br />
<b>Hold your breath - it gets better<br />
I'm like a shooting star</b><br />
<b>I've come so far<br />
I can't go back to where I used to be</b><br />
<br />
A whole new world<br />
Every turn a surprise<br />
With new horizons to pursue<br />
Every moment red-letter<br />
I'll chase them anywhere<br />
There's time to spare<br />
Let me share this whole new world with you<br />
<br />
A whole new world<br />
That's where we'll be<br />
A thrilling chase<br />
A wondrous place<br />
For you and me</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Gavin gave us a whole new world.<span style="mso-spacerun: yes;"> </span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
He encouraged us to love life, voraciously.<span style="mso-spacerun: yes;"> </span>He gave us reason to celebrate every breath,
every step and every triumph.<span style="mso-spacerun: yes;"> </span>He taught
us to look at the miracles of the universe from the blade of grass growing in
the crack in the sidewalk all the way up to the sliver of silver moon against
the bluest of skies perched atop fluffy white clouds.<span style="mso-spacerun: yes;"> </span>He showed us it all matters; everyone
matters.<span style="mso-spacerun: yes;"> </span>He revealed to us though we are
all small, though we all need a hand from time to time, we can accomplish great
things with great love… the smallest kindness can transform hearts.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
When I found out I was carrying a child with Down syndrome,
I “let my heart decide.” It has been a life of “indescribable feelings,” and he
is my “shooting star.”</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
So I guess it is no surprise to you that I am crying before
the house lights go down.<span style="mso-spacerun: yes;"> </span>Hugging Gavin,
crying happy tears on my magic carpet ride of a life he has brought to me.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
The theatre is beautiful.<span style="mso-spacerun: yes;">
</span>Agra bar is part of the stage and the theatre has been built around the
Aladdin theme.<span style="mso-spacerun: yes;"> </span>It is spectacular,
Broadway quality.<span style="mso-spacerun: yes;"> </span>The show starts… and
it is a dazzling show.<span style="mso-spacerun: yes;"> </span>No inch of the
theatre is left untouched by the magic… isles, ceiling and balconies… film
clips, pyrotechnics, people suspended on fly wire or disappearing through the
floor, giant dancing elephants and glowing camels.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
I haven’t mentioned Genie yet.<span style="mso-spacerun: yes;"> </span>A-Ma-Zing!<span style="mso-spacerun: yes;">
</span>Funny, timely comedy… he doesn’t miss a current event or a beat.<span style="mso-spacerun: yes;"> </span>He is fantastic!</div>
<div class="MsoNormal">
<br /></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTlQb0inaEFXuoAAcS1aiLCCEZzQWEApGptanppjeGBE0oOqDCv10dXlMhuBt4pltWCv3Aj7Z9niNZBHpH4rMwqZrvGMOiXXLd8WMVQ65552pPyjrrODAMuCgEG9a7doDxp17YBqVN2pV7/s1600/Aladin+Cast.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTlQb0inaEFXuoAAcS1aiLCCEZzQWEApGptanppjeGBE0oOqDCv10dXlMhuBt4pltWCv3Aj7Z9niNZBHpH4rMwqZrvGMOiXXLd8WMVQ65552pPyjrrODAMuCgEG9a7doDxp17YBqVN2pV7/s400/Aladin+Cast.jpg" width="400" /></a></div>
<div class="MsoNormal">
<span style="mso-no-proof: yes;"><br /></span></div>
<div class="MsoNormal">
After robust applause we are making our way out of the
theatre and my mom reaches out to grab my son’s shoulder.<span style="mso-spacerun: yes;"> </span>She doesn’t want to lose him in the
crowd.<span style="mso-spacerun: yes;"> </span>He turns to look to see who is
holding onto him and she realizes it isn’t Gavin.<span style="mso-spacerun: yes;"> </span>It is another boy who also happens to have
Down syndrome.<span style="mso-spacerun: yes;"> </span>His name is Austin and he
is 14.<span style="mso-spacerun: yes;"> </span>We have one of those “you’re my
family” moments right there in the lobby.<span style="mso-spacerun: yes;">
</span>We share one of our “pin trading” pins with Austin… and we are crying
the happy tears again.</div>
SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-10630085184908222232013-12-18T10:55:00.001-08:002013-12-18T10:55:55.288-08:00Disneyland Opening Day and NowOne of the treasures of our trip to Disneyland was going with my mom. She was there at the beginning and it was a delight to see her nostalgia. I have a sketch of her from Disneyland's opening that I just love. <br />
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I can't even imagine what it must have been like to be a Disneyland then. Her dad, my grandfather had a display on Main Street, "Lights Across America," and with his company, Century Lighting, their illumination engineering was in the design of several of the attractions. My grandfather also was part of the original "Dancing Waters" design in Las Vegas which was the infant to the glorious "World of Color" we enjoyed during our visit.</div>
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Disney Cast Members were great to my mom... made her feel like a celebrity and all. They gave her a special "Honorary Citizen" button and took her behind the scenes to have her picture taken in front of the castle (that was closed because of the filming of The View.)</div>
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<br />SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-5891696618014882442013-12-17T19:41:00.001-08:002013-12-17T19:53:51.112-08:00Radiator Springs -- That. Was. AWESOME!<!--[if gte mso 9]><xml>
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<br />
<div class="MsoNormal">
So after fast passing tickets for World of Color, our first
ride of the trip is Radiator Springs Racers.<span style="mso-spacerun: yes;"> </span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="mso-spacerun: yes;"></span>As we make our way into the entrance of the attraction I am telling my
mom it is like Autotopia and the cast member corrects me, “No you don’t drive
the cars here.”<span style="mso-spacerun: yes;"> </span>I am thinking, oh that’s
even better.<span style="mso-spacerun: yes;"> </span> </div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Then she says and it goes
up to 45 miles per hour.<span style="mso-spacerun: yes;"> </span>Okay.<span style="mso-spacerun: yes;"> </span>Not freaking out… yet.<span style="mso-spacerun: yes;"> </span>My mom will be celebrating her 70<sup>th</sup>
birthday in a few months.<span style="mso-spacerun: yes;"> </span>And she is a
young 70 but I still think gentle rides are appropriate… no need to create a
cardiac event.</div>
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<br /></div>
<div class="MsoNormal">
While we are waiting one of the cars tips over and they have
to spend some time (like 15 minutes) fixing it.<span style="mso-spacerun: yes;">
</span>Still not freaking out.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We board the ride and are advised how to strap in.<span style="mso-spacerun: yes;"> </span>Not freaking out much but the heart is racing
a bit faster.<span style="mso-spacerun: yes;"> </span>I look over at my mom and
her face mirrors what I am feeling, “What have I done?”</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
With a jerk and a bump we are off riding through Radiator
Springs, up hills and around curves… the road splits and another car is beside
us… the starting gun pops and we are racing fast!<span style="mso-spacerun: yes;"> </span>Whipping around curves, up and down… my hair
is flying everywhere and I am holding on too tight to let go until we are at
the end of the ride when I reach over to squeeze my mom’s arm.</div>
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<br /></div>
<div class="MsoNormal">
“I am so sorry mom, I had no idea…”</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
(Mom replies,)<span style="mso-spacerun: yes;"> </span>“That.
Was. AWESOME!”</div>
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SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-9738556372651373552013-12-17T19:34:00.000-08:002013-12-17T19:53:44.483-08:00Seeing Thor at Disneyland -- A Must Do!<!--[if gte mso 9]><xml>
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Thor… superpowers for the good and so much more than a comic
book God.</div>
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<br /></div>
<div class="MsoNormal">
During our many adventures at Disneyland we took the
opportunity to visit Innoventions.<span style="mso-spacerun: yes;"> </span>We
were told there were some Marvel exhibits there that we would want to see.<span style="mso-spacerun: yes;"> </span>After entering Innoventions, which is like a
museum of modern technology, we made our way toward the Iron Man and Thor
exhibits.<span style="mso-spacerun: yes;"> </span>Both had lines, and my son was
fixated on the Iron Man suit on display so they got in the Iron Man line and I
headed off to the Thor line.<span style="mso-spacerun: yes;"> </span>Both of
these exhibits are “visiting” so there isn’t good signage or architectural
direction.<span style="mso-spacerun: yes;"> </span>The line consisted of blue “painters”
tape on the floor that was too short to accommodate the crowd so the crowd had
divided itself into two groups that converged into one.<span style="mso-spacerun: yes;"> </span>It was probably a fire hazard and it was a
“play fair” challenge.<span style="mso-spacerun: yes;"> </span>It also lacked a
cast member to provide direction.<span style="mso-spacerun: yes;"> </span>I
watched as an argument almost broke out behind me, when tempers became heated a
Good Samaritan let the couple in line ahead of her.<span style="mso-spacerun: yes;"> </span>The line moved slowly but consistently and
when it became apparent that it was almost our turn I still didn’t have my
family.<span style="mso-spacerun: yes;"> </span>I explained to the cast member
my challenge and he let me go get my family and then let us into the waiting
area.<span style="mso-spacerun: yes;"> </span>This was awesome.<span style="mso-spacerun: yes;"> </span>The waiting area still had about a 15 minute
wait but we now had displays of weapons to look at and read about.<span style="mso-spacerun: yes;"> </span> </div>
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<br /></div>
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We were then escorted into a chamber (like
the elevator of Haunted Mansion) where more displays of head pieces and shields
are on display.<span style="mso-spacerun: yes;"> </span>Anthony Hopkins narrates
as we are “transported” to Asgard.<span style="mso-spacerun: yes;"> </span> </div>
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The
doors slide open and the MOST authentic Thor is on the throne. <span style="mso-spacerun: yes;"> </span>He recites his lines and nails the voice, the
laugh and the gestures.<span style="mso-spacerun: yes;"> </span>You truly feel
like you are standing in front of Thor.<span style="mso-spacerun: yes;">
</span>My kids are thrilled.<span style="mso-spacerun: yes;"> </span>Thor spends
a couple minutes with each family/group for a chat plus photo op and finally
(saving the best for last) it is our turn.<span style="mso-spacerun: yes;">
</span>Thor acknowledges the twins birthday, how now they are men (some jokes
ensue and the dead-on Thor laugh). Thor says hello to Samantha and Gavin and
then they pose for a photo, and another and still another.<span style="mso-spacerun: yes;"> </span> </div>
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<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEju__X0xtrIAfsVEh4tRAcZMxDB7xZcQpf7GDjMW7TkEAi_n2f77U7AUbiELugate4Ty3gswwsQ0dHcdCw5D_TSh_m38fCABoyi4i2cYMal6m_u05nim7tIY4O-Y2VGtYqJ6PZHyaRYSufu/s1600/20131119_133146.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEju__X0xtrIAfsVEh4tRAcZMxDB7xZcQpf7GDjMW7TkEAi_n2f77U7AUbiELugate4Ty3gswwsQ0dHcdCw5D_TSh_m38fCABoyi4i2cYMal6m_u05nim7tIY4O-Y2VGtYqJ6PZHyaRYSufu/s320/20131119_133146.jpg" width="320" /></a></div>
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He tries to convince my mom to join the photo
and she is all, “nah… that’s okay.”<span style="mso-spacerun: yes;"> </span>Thor
replies, “I would be honored to have a fair maiden such as yourself on my
arm.”<span style="mso-spacerun: yes;"> </span>She giggles that school girl
laugh, her knees do a little knock… and I swear, she swoons, “Gosh,
alright.”<span style="mso-spacerun: yes;"> </span>Suddenly, she is pushing Kris
out of the way so she can stand next to Thor.<span style="mso-spacerun: yes;">
</span>More photos.<span style="mso-spacerun: yes;"> </span>Mom blushing.<span style="mso-spacerun: yes;"> </span>Then she is touching his armor and patting
his muscled arms… he is mimicking her behavior and it is quite funny.<span style="mso-spacerun: yes;"> </span> </div>
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<br /></div>
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We gather our belongings… all grinning
ear-to-ear, ready to leave and Thor says, “Gavin, wait.”<span style="mso-spacerun: yes;"> </span>Thor says, “Gavin come back here… I need your
help with something.”<span style="mso-spacerun: yes;"> </span>He sets his hammer
down and says “<i style="mso-bidi-font-style: normal;">Only <em><span style="font-family: "Calibri","sans-serif"; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-theme-font: minor-bidi; mso-hansi-theme-font: minor-latin;">those the enchantments of Mjolnir deem worthy
may lift the hammer.” </span></em></i><em><span style="font-family: "Calibri","sans-serif"; font-style: normal; mso-ascii-theme-font: minor-latin; mso-bidi-font-family: "Times New Roman"; mso-bidi-font-style: italic; mso-bidi-theme-font: minor-bidi; mso-hansi-theme-font: minor-latin;"><span style="mso-spacerun: yes;"> </span>Thor gestures for Gavin to help
him and together they lift Mjolnir.<span style="mso-spacerun: yes;"> </span>Mom
and I are both crying at this point while Thor embraces Gavin telling him,
“Gavin you are worthy and very special.”</span></em></div>
SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-17363741171794255992013-12-17T19:24:00.000-08:002013-12-17T19:24:33.071-08:00New Disney Disability Access Service (Passport) Misses by Miles.<!--[if gte mso 9]><xml>
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="index heading"/>
<w:LsdException Locked="false" Priority="35" SemiHidden="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="table of figures"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="envelope address"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="envelope return"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="footnote reference"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="annotation reference"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="line number"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="page number"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="endnote reference"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="endnote text"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="table of authorities"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="macro"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="toa heading"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Bullet"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Number"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List 5"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Bullet 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Bullet 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Bullet 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Bullet 5"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Number 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Number 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Number 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Number 5"/>
<w:LsdException Locked="false" Priority="10" QFormat="true" Name="Title"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Closing"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Signature"/>
<w:LsdException Locked="false" Priority="1" SemiHidden="true"
UnhideWhenUsed="true" Name="Default Paragraph Font"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text Indent"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Continue"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="List Continue 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Message Header"/>
<w:LsdException Locked="false" Priority="11" QFormat="true" Name="Subtitle"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Salutation"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Date"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text First Indent"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text First Indent 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Body Text Indent 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Block Text"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Hyperlink"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="FollowedHyperlink"/>
<w:LsdException Locked="false" Priority="22" QFormat="true" Name="Strong"/>
<w:LsdException Locked="false" Priority="20" QFormat="true" Name="Emphasis"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Plain Text"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="E-mail Signature"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Top of Form"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Bottom of Form"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Normal (Web)"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Acronym"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Address"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Cite"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Code"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Definition"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Keyboard"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Preformatted"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Sample"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Typewriter"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="HTML Variable"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Normal Table"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="No List"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Outline List 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Outline List 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Outline List 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Simple 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Simple 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Classic 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Classic 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Colorful 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Colorful 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 4"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Columns 5"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Grid 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table List 8"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table 3D effects 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table 3D effects 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table 3D effects 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Contemporary"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Elegant"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Professional"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Subtle 1"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Subtle 2"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Table Web 3"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
Name="Balloon Text"/>
<w:LsdException Locked="false" Priority="39" Name="Table Grid"/>
<w:LsdException Locked="false" SemiHidden="true" UnhideWhenUsed="true"
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<w:LsdException Locked="false" SemiHidden="true" Name="Placeholder Text"/>
<w:LsdException Locked="false" Priority="1" QFormat="true" Name="No Spacing"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading"/>
<w:LsdException Locked="false" Priority="61" Name="Light List"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 1"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 1"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 1"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 1"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 1"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 1"/>
<w:LsdException Locked="false" SemiHidden="true" Name="Revision"/>
<w:LsdException Locked="false" Priority="34" QFormat="true"
Name="List Paragraph"/>
<w:LsdException Locked="false" Priority="29" QFormat="true" Name="Quote"/>
<w:LsdException Locked="false" Priority="30" QFormat="true"
Name="Intense Quote"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 1"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 1"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 1"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 1"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 1"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 1"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 1"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 1"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 2"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 2"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 2"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 2"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 2"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 2"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 2"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 2"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 2"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 2"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 2"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 2"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 2"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 2"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 3"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 3"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 3"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 3"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 3"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 3"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 3"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 3"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 3"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 3"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 3"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 3"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 3"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 3"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 4"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 4"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 4"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 4"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 4"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 4"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 4"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 4"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 4"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 4"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 4"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 4"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 4"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 4"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 5"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 5"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 5"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 5"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 5"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 5"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 5"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 5"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 5"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 5"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 5"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 5"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 5"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 5"/>
<w:LsdException Locked="false" Priority="60" Name="Light Shading Accent 6"/>
<w:LsdException Locked="false" Priority="61" Name="Light List Accent 6"/>
<w:LsdException Locked="false" Priority="62" Name="Light Grid Accent 6"/>
<w:LsdException Locked="false" Priority="63" Name="Medium Shading 1 Accent 6"/>
<w:LsdException Locked="false" Priority="64" Name="Medium Shading 2 Accent 6"/>
<w:LsdException Locked="false" Priority="65" Name="Medium List 1 Accent 6"/>
<w:LsdException Locked="false" Priority="66" Name="Medium List 2 Accent 6"/>
<w:LsdException Locked="false" Priority="67" Name="Medium Grid 1 Accent 6"/>
<w:LsdException Locked="false" Priority="68" Name="Medium Grid 2 Accent 6"/>
<w:LsdException Locked="false" Priority="69" Name="Medium Grid 3 Accent 6"/>
<w:LsdException Locked="false" Priority="70" Name="Dark List Accent 6"/>
<w:LsdException Locked="false" Priority="71" Name="Colorful Shading Accent 6"/>
<w:LsdException Locked="false" Priority="72" Name="Colorful List Accent 6"/>
<w:LsdException Locked="false" Priority="73" Name="Colorful Grid Accent 6"/>
<w:LsdException Locked="false" Priority="19" QFormat="true"
Name="Subtle Emphasis"/>
<w:LsdException Locked="false" Priority="21" QFormat="true"
Name="Intense Emphasis"/>
<w:LsdException Locked="false" Priority="31" QFormat="true"
Name="Subtle Reference"/>
<w:LsdException Locked="false" Priority="32" QFormat="true"
Name="Intense Reference"/>
<w:LsdException Locked="false" Priority="33" QFormat="true" Name="Book Title"/>
<w:LsdException Locked="false" Priority="37" SemiHidden="true"
UnhideWhenUsed="true" Name="Bibliography"/>
<w:LsdException Locked="false" Priority="39" SemiHidden="true"
UnhideWhenUsed="true" QFormat="true" Name="TOC Heading"/>
<w:LsdException Locked="false" Priority="41" Name="Plain Table 1"/>
<w:LsdException Locked="false" Priority="42" Name="Plain Table 2"/>
<w:LsdException Locked="false" Priority="43" Name="Plain Table 3"/>
<w:LsdException Locked="false" Priority="44" Name="Plain Table 4"/>
<w:LsdException Locked="false" Priority="45" Name="Plain Table 5"/>
<w:LsdException Locked="false" Priority="40" Name="Grid Table Light"/>
<w:LsdException Locked="false" Priority="46" Name="Grid Table 1 Light"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark"/>
<w:LsdException Locked="false" Priority="51" Name="Grid Table 6 Colorful"/>
<w:LsdException Locked="false" Priority="52" Name="Grid Table 7 Colorful"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 1"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 1"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 1"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 1"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 1"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 1"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 1"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 2"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 2"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 2"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 2"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 2"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 2"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 2"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 3"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 3"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 3"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 3"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 3"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 3"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 3"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 4"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 4"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 4"/>
<w:LsdException Locked="false" Priority="49" Name="Grid Table 4 Accent 4"/>
<w:LsdException Locked="false" Priority="50" Name="Grid Table 5 Dark Accent 4"/>
<w:LsdException Locked="false" Priority="51"
Name="Grid Table 6 Colorful Accent 4"/>
<w:LsdException Locked="false" Priority="52"
Name="Grid Table 7 Colorful Accent 4"/>
<w:LsdException Locked="false" Priority="46"
Name="Grid Table 1 Light Accent 5"/>
<w:LsdException Locked="false" Priority="47" Name="Grid Table 2 Accent 5"/>
<w:LsdException Locked="false" Priority="48" Name="Grid Table 3 Accent 5"/>
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<div class="MsoNormal">
If Disney’s intent of the Disability Access Service was to
help give guests with disabilities easier access to park attractions they missed
their mark… by miles.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Why miles?<span style="mso-spacerun: yes;"> </span>Well
Disneyland is 80 acres, has 8 lands and 58 attractions; California Adventure is
55 acres and has 34 attractions.<span style="mso-spacerun: yes;"> </span>Each
park has FOUR kiosks to sign up for attractions – one at a time.<span style="mso-spacerun: yes;"> </span>So one kiosk per 13+ acres.<span style="mso-spacerun: yes;"> </span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhC0y0z8KRoy2nuybDHiMmG8466oYX5bFyR01Mp1B1-Khd3TZVwTm2MCettG5rHffA4okhGkNXeUlKhqWuvFAEQ1X28awt5Whgvb88CUuT4ybKqnUkitTyrYwhDe6yc_QJC9h3tKh-SfsV9/s1600/photo(18).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhC0y0z8KRoy2nuybDHiMmG8466oYX5bFyR01Mp1B1-Khd3TZVwTm2MCettG5rHffA4okhGkNXeUlKhqWuvFAEQ1X28awt5Whgvb88CUuT4ybKqnUkitTyrYwhDe6yc_QJC9h3tKh-SfsV9/s320/photo(18).JPG" width="320" /></a></div>
<br />
A guest wheels up to the nearest kiosk,
selects an attraction which is penned onto the passport, and then rolls out to
the attraction.<span style="mso-spacerun: yes;"> </span>At the attraction they
show the passport to a cast member and are advised to go through the
handicapped entrance (often the exit).<span style="mso-spacerun: yes;">
</span>At the end of this entrance another cast member meets the guest, lines
through the passport, and lets them know how long the wait will be.<span style="mso-spacerun: yes;"> </span>After experiencing the attraction the guest
wheels back to one of the FOUR kiosks to sign up for another attraction. <span style="mso-spacerun: yes;"> </span>A lot of traversing the park to find a kiosk…
with a lot of time, wear-and-tear as well as energy expended.<span style="mso-spacerun: yes;"> </span>And the bottom line is as a guest with
disabilities (GWD) you wait in three lines (at the kiosk, at the entrance and
at the end of the entrance to have people look at your passport) plus walk 2x
as much.<span style="mso-spacerun: yes;"> </span>In fact the passport even says,
“When utilizing this service, it is possible to experience waits greater than
the posted wait time.”<span style="mso-spacerun: yes;"> </span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Well,
yeah… that is by design because the time on the passport is the wait time… you
just do the waiting somewhere besides the regular line plus you do the
additional waiting at the three stops.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
This program is fairly new so the cast members aren’t
experts at administering it.<span style="mso-spacerun: yes;"> </span>We were
there 3 days and utilized the passport for NINE attractions. (photo) Three
times the cast member failed to cross out the line with the attraction as we
prepared to board it (so technically we could have cheated and ridden again.)
One time – Indiana Jones – the cast member at the entrance crossed out the line
and when we went through the handicapped entrance (exit) and got to the where
we should board the ride we were almost denied access to the ride.<span style="mso-spacerun: yes;"> </span>Fortunately, the cast member only grumbled
about it and didn’t actually turn us away… but it still wasn’t such a magical
moment.<span style="mso-spacerun: yes;"> </span>And you caught the NINE
attractions in 3 days… epic fail.<span style="mso-spacerun: yes;"> </span>At $ 225
per ticket; party of 7… that was $ 175 per ride.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Z_bJ9aOfNL_oJ56QwU_B_aNGpt8APzxM7AbMgZnvKampt1l0FyU7yGq4eYGpQT668zfy1sW-iBL8R9ARK91iwTG8SBg2_yVESfA7o2LtfVGAoB8vhHNdTuvlldBNrf_IP_hkE6Kx-X3s/s1600/photo(19).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Z_bJ9aOfNL_oJ56QwU_B_aNGpt8APzxM7AbMgZnvKampt1l0FyU7yGq4eYGpQT668zfy1sW-iBL8R9ARK91iwTG8SBg2_yVESfA7o2LtfVGAoB8vhHNdTuvlldBNrf_IP_hkE6Kx-X3s/s320/photo(19).JPG" width="320" /></a></div>
My son doesn’t self-propel his wheelchair, for the same
reason we used the wheelchair, he has a condition which causes him to fatigue easily.<span style="mso-spacerun: yes;"> </span>So while at Disneyland he is pushed, pulled,
turned, lifted, accelerated and decelerated by me.<span style="mso-spacerun: yes;"> </span>He is 12 and I am pushing around 100+ pounds
plus the wheelchair navigating these parks that don’t exactly have a wheels
lane.<span style="mso-spacerun: yes;"> </span>Sometimes it felt like I was
swimming against the current of people.<span style="mso-spacerun: yes;">
</span>I had two people run into me on either side, simultaneously – I was
wearing a big red, polka-dot bow on my head so it’s not like you could miss me.<span style="mso-spacerun: yes;"> </span>I almost ran over two unsupervised
preschoolers after saying, “excuse me,” and navigating to avoid them as they
darted in front of me three times while I was leaning back trying to control
the wheelchair down an incline.<span style="mso-spacerun: yes;"> </span>Their
father snapped at me, “they’re just little kids,” and I thought, “that should
be supervised so they don’t get hurt, dad.”<span style="mso-spacerun: yes;">
</span>But I kept my mouth shut.<span style="mso-spacerun: yes;"> </span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
<span style="mso-spacerun: yes;"></span>The
reason I share this is that we asked for Disability Access because we needed
assistance and Disney’s new program took the assistance away and gave us more
work to do in its place.<span style="mso-spacerun: yes;"> </span>I understand
that people were cheating the previous system, but the people now being
punished at least the person writing this wasn’t cheating the system and
shouldn’t be punished.<span style="mso-spacerun: yes;"> </span>I have heard this
change makes it “fair for everyone.”<span style="mso-spacerun: yes;"> </span>If
people with disabilities are waiting longer than everyone else, being asked to
do more than everyone else and experiencing less, then someone needs to
redefine fair.<span style="mso-spacerun: yes;"> </span>Not one guest or cast
member offered “to be fair” and take a turn pushing the wheelchair. <span style="mso-spacerun: yes;"> </span>These are the same voices I have heard for
years about “fair” that then insist that everyone be treated fairly at the egg
hunt where my child gets trampled for one candy filled egg, or treated fairly
as he warms the bench in club athletics, or he is fairly at the end of the line
because he moves slower. <span style="mso-spacerun: yes;"> </span>From where I
stand fair is everyone getting what they need to be successful (or to successfully
enjoy Disneyland.)<span style="mso-spacerun: yes;"> </span> </div>
<div class="MsoNormal">
My son wasn’t riding
the majority of the fast pass (thrill) rides so this service didn’t assist him
either.<span style="mso-spacerun: yes;"> </span>Disneyland was a magical place
for people like my son where labels such as “special needs” actually meant
special, and now some of that magic is gone.<span style="mso-spacerun: yes;">
</span></div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
We planned this trip, we front-loaded with a Disney app, we
read all the brochures, we had an itinerary for each day, we made dining
reservations, we let them know our GFCF dietary needs, <span style="mso-spacerun: yes;"> </span>we educated ourselves on the fast pass system,
we watched the trip planning video, we pre-ordered our tickets, lodging and PMD
(powered mobility device for my dad who chose to only ride one ride), we mapped
it out, and we knew where to go to get a passport in both parks.<span style="mso-spacerun: yes;"> </span>I thought with all the planning it would be
easy.<span style="mso-spacerun: yes;"> </span>It wasn’t.<span style="mso-spacerun: yes;"> </span>It was physically and mentally tiring.<span style="mso-spacerun: yes;"> In the past we had gone from one ride to the next closest ride, in a natural progression but now we</span> had
to figure out where to find the nearest kiosk. The wait
time was the least of our challenges.<span style="mso-spacerun: yes;"> </span>We
would have gladly waited in a handicap-accessible line and forgone the passport
altogether but the times we tried to do this the cast members didn’t know what
to do… as if we were now cheating and must possess and use a Disability Access
Service passport to use the accessible entrances.<span style="mso-spacerun: yes;"> </span>It tasted of discrimination.</div>
<div class="MsoNormal">
<br /></div>
<div class="MsoNormal">
Here are some suggestions for changes in the future.<span style="mso-spacerun: yes;"> </span><br />
<br />
One: Training.<span style="mso-spacerun: yes;"> </span>If a cast member does it wrong another cast
member should not complain to me about this. I should be in a magical place
where I don’t have to listen to administrative issues.<span style="mso-spacerun: yes;"> </span><br />
<br />
Two: If the average guest rides… pick a
number, say 10 attractions in a day, then allow a GWD to sign up for ten
attractions spaced out in 30 minute increments.<span style="mso-spacerun: yes;"> </span>If a GWD wants to use all ten of those
spaces for Radiator Springs, then allow them to spend the next 5 hours riding
Radiator Springs 10 times.<span style="mso-spacerun: yes;"> </span>Eliminate the
back and forth to the kiosks.<span style="mso-spacerun: yes;"> </span><br />
<br />
Three: The
cast member that lines out the attraction on passport should be able to write
in the next one… no kiosks.<span style="mso-spacerun: yes;"> </span><br />
<br />
Four: Let me
address the quality.<span style="mso-spacerun: yes;"> </span>If you are going to
take a photo of the GWD make it one that is high enough quality resolution that
it doesn’t look like a black blob (see photo).<span style="mso-spacerun: yes;"> </span><br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIUx4qx7zL6T4vu_mcxwGjNCEr032wl7L0Bjb9rSqbuOVsxOPsdJfZHYT8KRvYEGtOz-Uy664TqriP5pCQL_UImZjeG2SIazKG8QvWmugKtm58ZJlNz6aa5kwNXFSW8ZNhDBbKnOkC8lvJ/s1600/photo(20).JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIUx4qx7zL6T4vu_mcxwGjNCEr032wl7L0Bjb9rSqbuOVsxOPsdJfZHYT8KRvYEGtOz-Uy664TqriP5pCQL_UImZjeG2SIazKG8QvWmugKtm58ZJlNz6aa5kwNXFSW8ZNhDBbKnOkC8lvJ/s320/photo(20).JPG" width="320" /></a></div>
<br />
Five:<span style="mso-spacerun: yes;"> </span>Add a lanyard or make it
small enough to fit in a pocket/pouch.<span style="mso-spacerun: yes;">
</span><br />
<br />
Six:<span style="mso-spacerun: yes;"> </span>Use a different color
pen/stamp each day so if a GWD wants to ride Radiator Springs 10 times a day on
a three day pass it doesn’t appear that they have already done this (also helps
avoid forgery.)</div>
<div class="MsoNormal">
<br />
I don’t want you to think our trip was without magical
moments.<span style="mso-spacerun: yes;"> </span>There were wonderful
experiences, and I will blog about all of them… however the Disability Access
Service wasn’t magical and Disney as well as all of my friends with
disabilities need to know this.</div>
<div class="MsoNormal">
<br /></div>
SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com3tag:blogger.com,1999:blog-8603019492048959739.post-62433606446972821422013-09-05T09:37:00.001-07:002013-12-17T20:03:45.030-08:00He is unconditional; he is incredible.So Miss-Uninvited-to-my-Birthday read the post... on the eve of her party and her fb comment was,<br />
"<span class="">I am at a loss for words that you would write a blog that
makes it sound like Gavin was uninvited to my party because he has
special needs when that is far from the truth!" Within minutes, her husband texts, "You've got to be kidding me! What the #*/$ has gotten into you?"</span><br />
<br />
<span class="">Um, okay... wow. The title is "Explain it to HIM." But now I am thinking someone needs to explain it to her (or them?) Not one bit of recognition that a child was hurt by her decision? No realization that my son was looking forward to her party and that it mattered to him? No grasp that in the rush to make everything seem perfect the most perfect little soul was being squashed. Kind of myopic but it's her party. </span><br />
<br />
<span class="">I am okay with this truth. One. It is a blog about Gavin who does happen to have special needs. So truth. Two. Birthdays (all holidays, special events, and activities that deviate from the standard schedule) are challenging for him. So truth. Three. We were uninvited. So truth, again. I apologize to anyone who read the blog and came to the a conclusion that we were uninvited because my son has Down syndrome. That was not her reason. The reason is irrelevant. Gavin doesn't know the reason and the reason has no bearing on his feelings.</span><br />
<br />
<span class="">What I hoped Miss-Uninvited-to-my-Birthday would come away with was: <b> It. Broke. My. Son's. Heart. </b></span><br />
<br />
<span class="">Now part of how I define my role as a parent is protecting my son from someone who would hurt him. I try to educate those that don't know better, and when someone does know better and still chooses to act in a hurtful way, well we distance ourselves. If someone doesn't get it I can't make them get it but I don't need to continue to subject my son (or myself) to those choices.</span><br />
<br />
<span class="">The lesson for me was even in his his disappointment, he comforted me. He didn't dwell on her insensitivity. He didn't spend on minute there... he moved right on to, "maybe next time." He is unconditional; he is incredible. I want to be more like him. I could use some of that divine chromosome. Our friendship could use some of that divine chromosome. </span>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-63946918652013229872013-09-01T18:19:00.001-07:002013-12-17T20:01:02.264-08:00Explain it to HIMAs a parent of a child with special needs we are use to not getting invited to birthday parties. It is almost easier. There are way too many sensory triggers at a birthday party... balloons, screams of excitement, presents that aren't for my child, sugar, adults dressed up as a giant whatever, games with rules, singing... usually bad singing and candles (hello fire?) We want the invite but can't quite bring ourselves to drop our kid at the party. We hover, we hope they will be perfect angels in a completely chaotic situation. We worry about our child's behavior. As if this wasn't challenge enough we have gone dairy and gluten free (no cake and ice cream, no pizza, no sandwiches, no ranch dip, no nuggets and no mac-n-cheese, to name a few). As I said we usually don't miss "not being invited" to birthday parties.<br />
<br />
But this one was different. It was for a beloved adult... someone my child cherishes. It was at a restaurant where we could order according to our dietary needs. No furry adults, no screams of excitement, and no games. I told my child about the party and he was excited.<br />
<br />
Then I got the text message letting us know not to attend. Yeah, you read that right, uninvited via a text. Oh it wasn't a straight out "BTW, Uninvited," text... no it meandered around with pleasantries, how am I doing, blah, blah, blah and then the punch... "(she) hopes (I) understand." I understand just fine. My next text should have been some gracious well chosen words. But my thumbs failed me.<br />
<br />
In the grand scheme of things, it's just a party. Again, we usually try to avoid these things. They aren't even considered. So this morning when he woke up, ran to his closet and returned with two ties for her special party... I had no words. How do I explain it to HIM? He trusts so completely and loves so unconditionally. He says, "(her name) 's Party?" I reply, "No honey, not today." He walks over to the calendar and points to where I have written it on today's square, "Sunday, party!" I sigh, reel him into an embrace, "You are so smart..." I am stammering for how to explain it to his heart. I pull him into a hug, "not for us, okay?" He smiles, puts his hand on my face catching a tear, "Okay, mama, maybe next time?"SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-41295078353561636572011-04-08T13:47:00.000-07:002011-04-08T13:47:34.255-07:00Happy Birthday Gavin!<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivfYcC4aP9KyYq_fINTz5KjufEjUfri18IkkZJ9CEJbPZGHdcRdWxConxpqQAXhFMoBPTwnkl9ZRAVzk9oM2LiU3L1u1PI0o-XtfZFhqMVooV5tLz-WKMRPoPKUtS4rzNaUfuh171qvg1E/s1600/Untitled.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="333" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivfYcC4aP9KyYq_fINTz5KjufEjUfri18IkkZJ9CEJbPZGHdcRdWxConxpqQAXhFMoBPTwnkl9ZRAVzk9oM2LiU3L1u1PI0o-XtfZFhqMVooV5tLz-WKMRPoPKUtS4rzNaUfuh171qvg1E/s400/Untitled.png" width="400" /></a></div><!--[if gte mso 9]><xml> <w:WordDocument> <w:View>Normal</w:View> <w:Zoom>0</w:Zoom> <w:PunctuationKerning/> <w:ValidateAgainstSchemas/> <w:SaveIfXMLInvalid>false</w:SaveIfXMLInvalid> <w:IgnoreMixedContent>false</w:IgnoreMixedContent> <w:AlwaysShowPlaceholderText>false</w:AlwaysShowPlaceholderText> <w:Compatibility> <w:BreakWrappedTables/> <w:SnapToGridInCell/> <w:WrapTextWithPunct/> <w:UseAsianBreakRules/> <w:DontGrowAutofit/> </w:Compatibility> <w:BrowserLevel>MicrosoftInternetExplorer4</w:BrowserLevel> </w:WordDocument> </xml><![endif]--><!--[if gte mso 9]><xml> <w:LatentStyles DefLockedState="false" LatentStyleCount="156"> </w:LatentStyles> </xml><![endif]--><!--[if gte mso 10]> <style>
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<div class="MsoNormal">Dear Gavin,</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">It is hard to believe a decade has passed since I witnessed the miracle of your birth.<span> </span>I had been in love with you for months, sight unseen, just a flutter of movements that seemed to settle when I talked to you.<span> </span>When you arrived you were the gentlest spirit, sleeping through the night almost right away; loving to be cuddled and held… it was hard to put you down.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">One of your most endearing qualities was how you would reach up your tiny hand and rest it ever so gently on my cheek.<span> </span>You wooed quite a few hearts with this move, you still do with an added, “I love you.”<span> </span>We all fall for it.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Over the years as you have hit each milestone, and celebrated birthdays I have said, “Oh, this is my favorite age,” only to have you move to the next step and be delighted a new.<span> </span>Today, you are a friend, an encourager, an optimist, a companion, a caregiver, an advocate, a play mate, a helper, a student, a collector, an enthusiast, a reader, a team mate, a magician, a comedian, a greeter, and a believer… you are the brother everyone wants, the friend we want to deserve, the son I could never do enough to be worthy of and yet here you are.<span> </span>I don’t know a person who loves more or tries harder; I don’t know a better person.<span> </span>Having you in our lives has changed us.<span> </span>It has changed our career paths, our priorities, our wants, our hopes and our dreams.<span> </span>Our vision of the world has a lens… you, which we now look through.<span> </span>Things that were once so important are just things now and moments that flew by unnoticed now hover like butterfly wings almost stopping time with how they awe us.<span> </span>You have taught us to see, taste, smell, feel and touch the world in a whole new way… that has made us richer; made us better.<span> </span>We are simpler because of you and at the same time we have so much more depth.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">With you in our lives we have learned a new language… a way of communicating that transcends words.<span> </span>You have shown us the value of speaking with expression, movement and sound.<span> </span>The music that is your laughter could soothe even the deepest hurts and the way you read us and reach us in these moments defies explanation.<span> </span>Your courage and tenacity to overcome obstacles…of adversity, discrimination, and ignorance… to give us grace over and over… you exemplify humanity at its finest.</div><div class="MsoNormal"><br />
</div><div class="MsoNormal">It is easy for me to admit, there is nothing I would rather do than spend time with you.<span> </span>Your company is easy and I never grow tired of your companionship.<span> </span>Your expectations are plain… my presence is present enough. I miss you when we are apart and I appreciate that you tell me you miss me too.<span> </span>That tender honesty and vulnerability are some of your noblest qualities.<span> </span></div><div class="MsoNormal"><br />
</div><div class="MsoNormal">Thank you for giving us such an amazing gift… you.<span> </span>Thank you for giving it every moment of every day for the last 10 years.<span> </span>I love you for always and happy birthday!</div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com2tag:blogger.com,1999:blog-8603019492048959739.post-63358083771479729012010-10-06T20:16:00.000-07:002010-10-06T20:35:52.448-07:00Moving Mountains?<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://photos-b.ak.fbcdn.net/hphotos-ak-snc4/hs723.snc4/64345_1446955219686_1407343232_31121892_3594694_s.jpg"><img style="display: block; margin: 0px auto 10px; text-align: center; cursor: pointer; width: 150px; height: 225px;" src="http://photos-b.ak.fbcdn.net/hphotos-ak-snc4/hs723.snc4/64345_1446955219686_1407343232_31121892_3594694_s.jpg" alt="" border="0" /></a>Of homework... gaak! Why is an inclusive education eight pages of homework when a typical education is two? This little learner has really put up with it two nights in a row -- for hours! Not 4 hours, but for two hours well I guess over two nights that is four hours. Look at me doing my math! Still way too long so we were jumping off the stairs during a well earned break. Mommy wanted to jump off of somewhere higher but there would still be homework and a mess to clean up so she thought wiser. He has gotten so smart about the "reward system." Here is how Gavin sees it: a problem on the page is an m&m, whole page is a prize, whole pile is a movie. Oh but I need some juice and maybe some popcorn. I am cold sitting here for two hours so maybe a blanket too, oh that feels nice. Now maybe you could scratch my back. Oh yeah I have to go to the bathroom. Here's how mom sees it: (one to one correlation = number of problems on page same as number of m&ms, sneak in a color ID by asking Gavin which color he's going to eat next, sneak in a subtraction equation = how many left, prize is a balloon (oral motor and fine motor) that we toss around and use on a break (OT gross motor) while identifying left and right sides and body parts. The movie is my ahhhhh time -- I've gotten smart about the "reward system" too!<br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjap3lbOfUZUOjby3aMJIbclRswN0Q3OuV4Ix3sQJVKMJ4333e9eKiuxnLqm_wlAe2DHbokQQiPBio1O6ouc4SUbOVamb-GNtstP7zlvxK5Scxm8ymjrDBWOG69QAwlZCxlC5zHxJE5DAZH/s1600/64345_1446955219686_1407343232_31121892_3594694_s.jpg"><br /></a><br /><img src="file:///C:/Users/pc/AppData/Local/Temp/moz-screenshot-3.png" alt="" />SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-88272400919123049002010-10-04T18:34:00.000-07:002010-10-04T18:45:32.468-07:00Kickin' It Gavin Style<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://sphotos.ak.fbcdn.net/hphotos-ak-snc4/hs096.snc4/36167_1444805645948_1407343232_31119151_3991381_n.jpg"><img style="display: block; margin: 0px auto 10px; text-align: center; cursor: pointer; width: 432px; height: 648px;" src="http://sphotos.ak.fbcdn.net/hphotos-ak-snc4/hs096.snc4/36167_1444805645948_1407343232_31119151_3991381_n.jpg" alt="" border="0" /></a><br />So we are always trying to tell people about the "sameness" of Down syndrome. How people with Down syndrome are people first and more like you than different. And that is true. Gavin likes corn dogs and chicken nuggets and McDonalds, and Disney and movies and reading... and, and... fill in the blanks for a nine-year-old boy.<br /><br />However some of the differences are cool too. Take today's photo for instance. Gavin has a way of taking up the chair! He just won't sit "normal" and trust me this has driven a few teachers to the brink (or is it to drink?)! I love how he draws and lives outside the lines. We sleep upside down sometimes and eat popcorn for breakfast. We take a bath with the dog. We dress up in party clothes to go to Mimis, we dance on the lawn. Everyday he holds out his elbow so he can escort me to the car to go home. And every day he tells me I am beautiful, so pretty and a princess. All I've got to say is, Hooray for not being so stinking "normal."<br /><br /><img src="file:///C:/Users/pc/AppData/Local/Temp/moz-screenshot-2.png" alt="" />SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-68201340374014234192010-10-01T15:22:00.001-07:002010-10-02T15:36:16.937-07:00Introducing Tallulah<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="http://sphotos.ak.fbcdn.net/hphotos-ak-ash2/hs358.ash2/63847_1442473827654_1407343232_31113441_484501_n.jpg"><img style="display: block; margin: 0px auto 10px; text-align: center; cursor: pointer; width: 648px; height: 432px;" src="http://sphotos.ak.fbcdn.net/hphotos-ak-ash2/hs358.ash2/63847_1442473827654_1407343232_31113441_484501_n.jpg" alt="" border="0" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJlILvyifHJ3g_GPFMB-zFsZ7uzxAurft896BcTGQvi_7GaCmR81T6YJXYIo_jbsaL4FUbZReDIlXRe0HNhyZB-RCvFZmGpy6jCKhfrmYTYpLz4uJkhkCBDxfgupHNmTUfjUBRlhLTr2mj/s1600/001.JPG"><img id="BLOGGER_PHOTO_ID_5523206606837781186" style="display: block; margin: 0px auto 10px; width: 240px; height: 320px; text-align: center;" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJlILvyifHJ3g_GPFMB-zFsZ7uzxAurft896BcTGQvi_7GaCmR81T6YJXYIo_jbsaL4FUbZReDIlXRe0HNhyZB-RCvFZmGpy6jCKhfrmYTYpLz4uJkhkCBDxfgupHNmTUfjUBRlhLTr2mj/s320/001.JPG" border="0" /></a>I know you may be thinking what does a dog have to do with Down syndrome awareness? Well in a word... everything. I will tell you a story. You see, I went with my family to Monterey Bay Aquarium and there was a group of kids there, special kids, different kids, I don't know -- you pick the title, and I am drawn to kids like mine, so when I see them it is like long lost family; rediscovered, and I run across the room, waving my arms, appearing quite crazed to introduce myself, shake hands, talk, hug... effervesce my enthusiasm all over the place. So I go bounding over to these kids, and with these AmAzInG kids, acting incredible I might add, is a big dog --hello? we are in the aquarium! Well I hit my brakes and my brain does this little screech sound in my head and I am like -- WoW a Dog?! I stand there with my head sort of tilted, and I am sure I look lost or confused when this boy of about 12 (who I can see is wondering what my diagnosis is) says, "Hi, yeah, this is Sadie she is our therapy dog. You can pet her if you want." So I am petting the dog and calming down from my excitement of seeing my people and processing a dog walking around in the aquarium and the kids are watching me. One girl says, "She helps us to be calm, she is good at that." Obviously she is helping me at that moment, as I continue to pet her. Another says, "She helps keep us in our group and if one of us walks away from the others, she barks." A boy in a wheelchair says, "she gets things for me, like when I drop my pencil." The stories of how Sadie helped this group of kids went on for quite a while as I met each of the kids and their program leaders. I was one of many that learned more about a dog and some amazing kids than about sea life that day. She was the awareness dog.<br /><br />And I knew I wanted a Sadie for Gavin. Someone to help him, calm him, herd him; be a companion for him and a trusted friend. Fast forward to a month ago and meet Tallulah. Now she is still a puppy and busy learning how just to be a good dog (not eating shoes, peeing outside, etc.) but she is so smart and in love with Gavin. Okay so maybe she thinks he tastes like a Milk-Bone dog biscuit, but she always wants to be near him. Sleeping beside him, under his chair while he does homework, stretched out watching movies next to him. They watch Marmaduke, BH Chihuahua and Marley & Me -- over and over.<br /><br />Today they took a bath together -- his idea. Gavin made the bath, got in, washed, washed his own hair, and then called Lula and proceeded to give her a nice scrub. Therapy dog... hmm good thing. Good therapy. What does a dog have to do with Down syndrome awareness... in a word... everything.<br /><br /><br /><br /><div></div></div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com1tag:blogger.com,1999:blog-8603019492048959739.post-62111177452896577442010-10-01T15:21:00.001-07:002010-10-03T20:39:26.754-07:00Rainy Days and Sundays -- I love them!<div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiC2CXxuf89KPnuT3uc6Lt9mFPTZm7CwPuwPnynzzWpA5KArzMor16_W9yINaPq44koD1DuLYqYldIkidA1C-e6nW7eJniHfqJdJaC6TkwcjNo2Nc-PwcWbmOGslCyCAb-uUise7v9p3Zb3/s1600/007.JPG"><img id="BLOGGER_PHOTO_ID_5523206352368286418" style="display: block; margin: 0px auto 10px; width: 240px; height: 320px; text-align: center;" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiC2CXxuf89KPnuT3uc6Lt9mFPTZm7CwPuwPnynzzWpA5KArzMor16_W9yINaPq44koD1DuLYqYldIkidA1C-e6nW7eJniHfqJdJaC6TkwcjNo2Nc-PwcWbmOGslCyCAb-uUise7v9p3Zb3/s320/007.JPG" border="0" /></a>We enjoyed a little sunshine this afternoon but we loved the rain this morning. Huge rainbow that arced up high in the sky and enough raindrops to get us wet but not deter our morning adventures in the garden. Sundays are my favorite days -- we don't make too many plans, we get caught up on things, and we always find time to be together. This Sunday was no different... well except we woke up -- upside down. Yeah, Lula had confiscated all the pillows at the head of the bed so we made a comfy nest of the blankets and snuggled after the alarm. Gavin sits up and says, "Breakfast, mommy... mmm coffee?" I am a sucker for coffee so I got up. Gavin reminded me, "Iron Man 2?"...yes later. "Aww, when?" After chores -- laundry, dishes, beds and stuff. "K... let's go, come on, get with it." He likes to hustle me along on the weekend, it is revenge for me hustling him along all week. I say, I bet the chickens are hungry. "Cat, mama and Lula." She had snuck off to the boys' room (they were already up so she commandeered their bed). We got sidetracked in the kitchen when we discovered Kris was drinking the coffee. "MAMA, Kris - Coffee??" Yeah, what's that about (somebody's turning 18 -- whatever?) Do you like coffee? Yeah, sometimes. (Any coffee drinkers out there think sometimes is an appropriate answer). So Gavin and I go make our mug of coffee, sort of look off at Kris, look at each other and shake our heads, poser. I say, hey Gav, toast or muffin. "Mmm, popcorn!" No Gav, breakfast... how bout pancakes? "Nah, popcorn." (by this time the bag is out of the cubbord, the chair is pushed up to the counter and he is placing the bag in the microwave. Okay, popcorn for breakfast. I love Sundays. As Gavin hands me the menu for the day. "Mama, draw popcorn!" Okay, what about lunch? "Chicken-noodle-soup." Okay do you want stars or ABCs? "Maaaaaa, chickennoodlesoupppppp." Hrrump, okay Gav, got it. "And orange chicken...." For lunch? "No Maaaa, dinner, k?" Okay. "Draw it." I am thinking what the.... does orange chicken look like using a blue dry-erase marker. I draw a Chinese food take-out container with two chopsticks. It's better than the bowl and spoon I drew for the soup. "Forgot noodles." Whaaaaat? "Noodles, maaaaa, put the noodles in right here!" I draw the noodles, okay? "K, juice." Draw juice? "No maaaaa, in my cup; three ice." Got it, three ice. "Lula's in the rain!" Really? "Look, maaaa!" Let's go get her. And out into the rain we went. I love rainy days and Sundays.<br /><br /><div></div></div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-79022521611773007222010-10-01T12:15:00.000-07:002010-10-01T20:51:52.549-07:0031 for 21 Begins - Welcome October - Down Syndrome Awareness Month!<div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwWuCKJ_iMFlYTBgPO-AUwiBhtafG_1l88sdEiSzDb8Dd4BKqBthxvO0PhB0bcfEK_fDv6q7dOnmHa0jFLtutTTT7BlUr44ALrK-laSLVNUjWPxvtG-OZWApl57uqhBR7Eo1_RWuXo0xfi/s1600/017.JPG"><img id="BLOGGER_PHOTO_ID_5523174471135967794" style="display: block; margin: 0px auto 10px; width: 240px; height: 320px; text-align: center;" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwWuCKJ_iMFlYTBgPO-AUwiBhtafG_1l88sdEiSzDb8Dd4BKqBthxvO0PhB0bcfEK_fDv6q7dOnmHa0jFLtutTTT7BlUr44ALrK-laSLVNUjWPxvtG-OZWApl57uqhBR7Eo1_RWuXo0xfi/s320/017.JPG" border="0" /></a> I can hardly believe that it is time for 31 for 21 again! This year has just flown by, hasn't it? We continue to grow and thrive as a family... Gavin is 9 years old and his brothers, Nic and Kris are on the cusp of turning 18... amazing. Gavin continues to be in inclusive environments -- which he loves -- at school and in after school programs.<br /><br />This year my goal has been to reach out and discover our amazing Down syndrome community. I am happy and proud to say I have over three hundred friends on Facebook, most of which have had their lives touched by someone with Down syndrome. It is a far cry from the 400 thousand people with Down syndrome but it's a start. I love all the photos and hearing their stories. I love the You Tube videos dedicated to Down syndrome and the information I can access and share about Down syndrome on Facebook. I love that we can be connected as a community this way.<br /><br />This year also marked the first anniversary of Julia's passing (read about her in older posts) and we still miss her so much. Every where we go we see tinker fairies and imagine her laughter. We wish we could grow up with her but must be content with growing with her all around us. I am grateful that her parents remain in our lives and continue to teach me so much about strength, compassion and grace. I need this -- every day.<br /><br />The recession and amendments to the Lanterman Act have brought much change to the services we are able to access. On one hand it has made our road a bit rougher but it has also revealed our true partners on this road to ability. I am in awe of their dedication working tirelessly, unfunded for people with disabilities. It soothes the shame I feel toward the agencies that continue to misappropriate funds, but enough about that.<br /><br />During this month I will blog as often as possible in hopes of bringing a glimpse of our life -- the joys and struggles, laughter and tears, hopes and dreams -- in honor of Down syndrome Awareness month and Project 31 for 21.<br /><br />Thank you for sharing our journey and I welcome your comments.<br /><br />Suze<br /><br /><a href="http://unringingthebell.typepad.com/my_weblog/2010/09/4th-annual-31-for-21-blog-challenge.html"><img src="http://i185.photobucket.com/albums/x198/wish4rk/TTR31for21-5.png" /></a><br /><a href="http://unringingthebell.typepad.com/my_weblog/2010/09/4th-annual-31-for-21-blog-challenge.html">Grab This Button</a><br /><br /><div></div></div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-55932347833891204632009-10-08T13:01:00.002-07:002009-10-08T13:17:10.929-07:00Welcome Fall!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhrTObLH6QF240D0tC1EtxjhpgImOswtFEQyhEzTAVrmU88eI-EFJ3Hw-0rCxDZdUTK-Y6lQj30gfUjddFcvVgkK_7bVFQLzaaHBeOMhGBp2oJNfd4o2PcijB_-Xqj8dxZS0QJEIoIZO-k/s1600-h/100_2130.JPG"><img id="BLOGGER_PHOTO_ID_5390322069783941682" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhrTObLH6QF240D0tC1EtxjhpgImOswtFEQyhEzTAVrmU88eI-EFJ3Hw-0rCxDZdUTK-Y6lQj30gfUjddFcvVgkK_7bVFQLzaaHBeOMhGBp2oJNfd4o2PcijB_-Xqj8dxZS0QJEIoIZO-k/s320/100_2130.JPG" border="0" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiThUbE6TUuXo6wGprALo_NnyIbaNU5tppqjEk6trd7j0INNhMgQ2MS87LXHPAb_ORAVXtIuO_MBgUHYAgOJHsRhOwSW1Gpc2S9kTxZneb_GXaNZg9pee628VEid6_VTAgJMTu4CORC4fQt/s1600-h/100_2123.JPG"><img id="BLOGGER_PHOTO_ID_5390321993968180562" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiThUbE6TUuXo6wGprALo_NnyIbaNU5tppqjEk6trd7j0INNhMgQ2MS87LXHPAb_ORAVXtIuO_MBgUHYAgOJHsRhOwSW1Gpc2S9kTxZneb_GXaNZg9pee628VEid6_VTAgJMTu4CORC4fQt/s320/100_2123.JPG" border="0" /></a><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvkZKoOAXVTQ7q97Z5TMN76_bjpoFOTafZLtONQylkTq6sRmI0KREoA0WGFT_PZPQPP6AsSzhgHXp7SBxWf8O-PeGGFfGaX2wJQulWePGAfvC1aLOPdJyu06524JX6_f037b9wUjJhHKEy/s1600-h/100_2124.JPG"><img id="BLOGGER_PHOTO_ID_5390321903917077154" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvkZKoOAXVTQ7q97Z5TMN76_bjpoFOTafZLtONQylkTq6sRmI0KREoA0WGFT_PZPQPP6AsSzhgHXp7SBxWf8O-PeGGFfGaX2wJQulWePGAfvC1aLOPdJyu06524JX6_f037b9wUjJhHKEy/s320/100_2124.JPG" border="0" /></a><br />Being back at school is in full swing, the leaves are changing and we are starting to need a sweatshirt in the morning. Oatmeal to start the day and soup on the stove in the evening! Love this time of year... and we just bought our first pumpkin. Still have to get out the fall decorations and hem all the long pants but this weekend is looking good for that. Until then you will find us cuddling on the couch with a soft blanket watching our new favorite movie, "Monsters vs. Aliens."<br /><br /><div></div></div></div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com1tag:blogger.com,1999:blog-8603019492048959739.post-44303131174459614562009-10-08T13:01:00.001-07:002009-10-08T13:23:43.577-07:00Ears, Sign Language and Communicating<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLURP27GGFJQc52MIc_-syZr9G4dtZ57cZFe7wRpt3EMnJLJRlYKxDgY4x2FezOvsBNvJPDfEnyHcaDf5HSt-VB79GgemxF3rBqD4Qbp7qsKHSjiaMILjQ22D-6UgkgnzpkES-c5JbI_jV/s1600-h/100_2112.JPG"><img id="BLOGGER_PHOTO_ID_5390321782699411954" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLURP27GGFJQc52MIc_-syZr9G4dtZ57cZFe7wRpt3EMnJLJRlYKxDgY4x2FezOvsBNvJPDfEnyHcaDf5HSt-VB79GgemxF3rBqD4Qbp7qsKHSjiaMILjQ22D-6UgkgnzpkES-c5JbI_jV/s320/100_2112.JPG" border="0" /></a>Hearing problems and Down syndrome seem to go hand-and-hand but that doesn't mean you can't get your point across! There are amazing tools out there to help... including regular audiological assessments. Gavin uses hundreds of signs, lots of picture exchange and a sound field system to amplify the teacher. What ever it takes give people with Down syndrome the power to hear and be heard!<br /><div></div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-214830637336457722009-10-08T13:00:00.002-07:002009-10-08T13:28:20.744-07:00After School Programs are Amazing!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7yl340u2Uzj2F4vsUuoQIkpGPft2Ydx4juGIBkXyXshu-ezHq2pIJBCYUz-7sDEo87tAUPYdLby6zVDNS5EaJv6MtZlupaAN3i2M_gnB2v_SXuE4LH4u4gFQ0nAc9XOt0pDW6OymD8w98/s1600-h/100_1987.JPG"><img id="BLOGGER_PHOTO_ID_5390321645700313090" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7yl340u2Uzj2F4vsUuoQIkpGPft2Ydx4juGIBkXyXshu-ezHq2pIJBCYUz-7sDEo87tAUPYdLby6zVDNS5EaJv6MtZlupaAN3i2M_gnB2v_SXuE4LH4u4gFQ0nAc9XOt0pDW6OymD8w98/s320/100_1987.JPG" border="0" /></a><br /><div>One place we have found continued acceptance and inclusion is in our afterschool program, Stone Soup. Here Gavin has made so many friends from several of our local elementary schools and built lasting relationships with adults in our community. At Stone Soup, Gavin is given academic support, social opportunities, and some exposure to recreation from visiting community activities like karate and dance. He loves movie Fridays with ice cream and dance party days!</div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-69318017514640168332009-10-08T13:00:00.001-07:002009-10-08T13:35:05.507-07:00People Who Lift Us Up!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDVlgOJYewJfH5gTnFFkE8hrPv2I0N5-vtD2dlbf5gP1Zi-jWBw_sK3Xijo9pkdLR-h2aiJVsVFeb82Snz9HV-No_qpDZfjHhIo2UWfHVGC3pz2G5AjSPgGUhJbd6VjARm9Bjjh5fy_G-o/s1600-h/100_2250.JPG"><img id="BLOGGER_PHOTO_ID_5390321530776242866" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDVlgOJYewJfH5gTnFFkE8hrPv2I0N5-vtD2dlbf5gP1Zi-jWBw_sK3Xijo9pkdLR-h2aiJVsVFeb82Snz9HV-No_qpDZfjHhIo2UWfHVGC3pz2G5AjSPgGUhJbd6VjARm9Bjjh5fy_G-o/s320/100_2250.JPG" border="0" /></a>Behind every amazing person with Down syndrome is a support system. One of the key people in our support system has been the fabulous and amazing Miss Amanda! She rescued us from the terrible situation we were in and put the smile back on Gavin's face. She is a wonderful part of our extended family that we have been blessed to meet because of Gavin having Down syndrome. With the delighful Miss Amanda also came her whole family which we feel lucky enough to call our own!<br /><div></div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com3tag:blogger.com,1999:blog-8603019492048959739.post-45302660387923161412009-10-08T12:59:00.000-07:002009-10-08T13:41:38.316-07:00Shines More Than The Rest<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwi1V2qdd9FWC-f0oT_8qpLA6FaTQC0INbgutUK8llF_ksXRAWxjckuz17Adz9gZ7VU6Ig1eBDiFP6iFpYfioVHUgt5RYSnxoJcrN63ws9-_IDY7b1oHegRUh5hILfEALkrG7Ct3jsXYZn/s1600-h/100_2538.JPG"><img id="BLOGGER_PHOTO_ID_5390321383885360482" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 320px; CURSOR: hand; HEIGHT: 240px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwi1V2qdd9FWC-f0oT_8qpLA6FaTQC0INbgutUK8llF_ksXRAWxjckuz17Adz9gZ7VU6Ig1eBDiFP6iFpYfioVHUgt5RYSnxoJcrN63ws9-_IDY7b1oHegRUh5hILfEALkrG7Ct3jsXYZn/s320/100_2538.JPG" border="0" /></a>The curious thing about Down syndrome is when you don't know someone with it, you can be afraid but once you get to know someone with Down syndrome you begin a love affair that can last a lifetime. People with Down syndrome are incredibly loyal and enthusiastic friends. Suddenly, you find yourself smiling all the time!<br /><div></div>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-84074487574096220332009-10-01T19:04:00.000-07:002009-10-01T19:38:01.410-07:00Being Like You<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgew7jktJWNzUp7-KhteNKoiwkIPjD99gHb5toOGZ0dorVfR7sDNiG9Ux1HqusST8EmCp6jL0tbIAO2ZN5Aa7cih-cRPW3-ofX7xK8AhU15fo-aDLHHLReOguBwYz9Eud27zyTZM0r4m0R2/s1600-h/100_3635b.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 213px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgew7jktJWNzUp7-KhteNKoiwkIPjD99gHb5toOGZ0dorVfR7sDNiG9Ux1HqusST8EmCp6jL0tbIAO2ZN5Aa7cih-cRPW3-ofX7xK8AhU15fo-aDLHHLReOguBwYz9Eud27zyTZM0r4m0R2/s320/100_3635b.jpg" alt="" id="BLOGGER_PHOTO_ID_5387818269335998466" border="0" /></a>Today I will celebrate you and be more like you. I will embrace your enthusiasm and recognize music is reason enough to dance... I will not worry who is watching. I will embrace friends with a hug, a handshake, a high-five and honor that we are all connected. I will face the challenges in the obstacle course of life with eagerness for the adventure and when I "wipe-out," I will laugh while I get up and get back in the game. With each new opportunity I will smile and see the "WoW," and eagerly run to you to share. I will tuck a treasure in my bag as I head out into the world each day, so when I am discouraged or tired or lonely I will have something to hold in my hand that helps me be brave. When I like something I will say so, when someone does a good job I will say so, and when I have done a good job I will say so. I will laugh, I will play, I will watch movies, hum theme songs and read good books. I will be loyal to friends, and favorites, and even my own ideas no matter what anyone says. When I am wrong I will say sorry, sign sorry, act sorry and make amends until you believe I am sorry. I will believe in superheros and angels, Santa and wishing on a star. I will talk to myself if I want to. I will tell you how beautiful you are every day, touch your face with amazement and always insist on a hug and a kiss when we say goodbye and hello.SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-65568104575720303742009-08-15T19:33:00.000-07:002009-08-15T20:00:00.844-07:00Building Julia's All-Access Playground<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitDkc4dSaKwxOH7tclvPnwv0J7PkrHGR9FVZDFC_DRK4B6j3xanFToLL4qgvuStt_sWNF1_jIxjcH7GXQC73gKmtF5y9Mu4Ub-EG3tOzap8tSOje_Rx3ZNgL6mYBVxXnCB2BBW2sc7opiH/s1600-h/100_3712.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitDkc4dSaKwxOH7tclvPnwv0J7PkrHGR9FVZDFC_DRK4B6j3xanFToLL4qgvuStt_sWNF1_jIxjcH7GXQC73gKmtF5y9Mu4Ub-EG3tOzap8tSOje_Rx3ZNgL6mYBVxXnCB2BBW2sc7opiH/s320/100_3712.JPG" alt="" id="BLOGGER_PHOTO_ID_5370384328851617522" border="0" /></a>How do we build an All-Access Playground in memory of Julia Hatcher? It starts with a vision of Julia and Gavin playing together on the sidewalk while all the other kids were playing on the playground: on slides, in tubes, up on platforms, climbing stairs, swinging from bars, steering wheels, looking through a bubble window. The other kids trudged through the bark to get to the playground -- this was a place Julia's walker wouldn't go -- so she and Gavin stayed behind. Then it takes a vision of Julia and Gavin playing in a bounce house where there were no barriers to over come (pictured several blogs ago). And pictures of Julia on her swing set her Grandpa Doumas modified. And pictures of Gavin overcoming obstacles to play (pictured here). <br /><br />Then it takes asking the question, "What if we took down all the barriers?" What if we created a place where everyone could play? Ages from 2 to 92 could walk or roll or even crawl across safe surfacing to play with ground level equipment, roll up a ramp and transfer onto a slide. Spin a rainmaker that was both pleasing to the eyes and the ears, practice the signed alphabet and feel the braile alphabet, giggle at their image in a wavy mirror, sit and rest for a while at a quite tree-shaded, bench box while enjoying the scent of lavendar and rosemary.<br /><br />Then it takes a lot of people saying yes... Mr. Mistlin, the City Council, Julia's amazing family and then a whole lot more saying yes I support this with their time and their money. It was amazing to see the support today for the yard sale... especially in this economy that so many people bought something and then said "keep the change; it's for a good cause." Thank you for believeing in this vision and for loving Julia so much. Let's "keep the change" and build a playground without barriers that everyone can access.SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-22639523211796302402009-08-13T03:27:00.000-07:002009-08-13T04:00:47.961-07:00Save Services for Thousands of Kids<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie0H76pvYi8X33HsjRMLOcHmoZ7f3WHVkMeFbhuzt5Qs2ylxkxRsQiIpkxbWhmgv9F6YpC6bq_D8xsZ8YJutxC-ZXcx62BjniTMAJMA0q2uRdwzrahuJOgUR1Bw68BjROPkXEFx5w88C2N/s1600-h/100_3689.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEie0H76pvYi8X33HsjRMLOcHmoZ7f3WHVkMeFbhuzt5Qs2ylxkxRsQiIpkxbWhmgv9F6YpC6bq_D8xsZ8YJutxC-ZXcx62BjniTMAJMA0q2uRdwzrahuJOgUR1Bw68BjROPkXEFx5w88C2N/s320/100_3689.JPG" alt="" id="BLOGGER_PHOTO_ID_5369393821426918818" border="0" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjayER8f9QjgeHxNQmrnPeri282vMMGl6Ot_9dUoHZld2h4HOop-z0BOubde5Ds0tV6WxysDMEYBlLAYTp_mbxAIMmDlZGDLlgBA8Bb99MC4Fs3ZlATTenalVeefs9Pvi8aPPGbecx5Xq4Z/s1600-h/100_3697.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjayER8f9QjgeHxNQmrnPeri282vMMGl6Ot_9dUoHZld2h4HOop-z0BOubde5Ds0tV6WxysDMEYBlLAYTp_mbxAIMmDlZGDLlgBA8Bb99MC4Fs3ZlATTenalVeefs9Pvi8aPPGbecx5Xq4Z/s320/100_3697.JPG" alt="" id="BLOGGER_PHOTO_ID_5369393684229755698" border="0" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiXSpTjusjJITCNj07ikGei6nCCAhIcZmhBe3paBlctbSQ77yh7x_6Fi6zKsFir2hu1Mv8Gq62ISlu8Qw1Ct1VuaMyMhn7PiY04efq8G3XQe5NMc5pEf_qNhePTgPakWpRAsca5b8otpXl/s1600-h/100_3692.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiXSpTjusjJITCNj07ikGei6nCCAhIcZmhBe3paBlctbSQ77yh7x_6Fi6zKsFir2hu1Mv8Gq62ISlu8Qw1Ct1VuaMyMhn7PiY04efq8G3XQe5NMc5pEf_qNhePTgPakWpRAsca5b8otpXl/s320/100_3692.JPG" alt="" id="BLOGGER_PHOTO_ID_5369393525701944466" border="0" /></a>A week ago we were one of the thousands of families that got a letter letting us know the State of California is going to be canceling our services. To do this, lawmakers, without public input, amended a law on July 28th so they could take away services from people with developmental disabilities in a letter 5 days later. Further, they redefined the services as social and recreational rather than therapeutic which made these services seem frivolous. At the same time they delivered this blow to all the families served, not one pink slip was handed out... yeah you read that right... though none of the families will receive services they are still defined as clients so that money continues to provide jobs. Where but in government can you serve zero customers but still be guaranteed a job?<br /><br />Gavin works with weights building strength, increases vestibular balance, proprioception, crossing the mid line, prepositional concepts, right and left, colors, alphabet, numbers, following directions, building confidence and self esteem while increasing physical and cognitive function. In the first photo he is working with weights to increase core strength. In the second photo he is counting. In the third photo he is doing a move called "baseball" and following this move he stands on the horse. Now I don't know about you but I don't know too many people that stand on a horse.<br /><br />The handsome men you see with Gavin are his big brothers who have been volunteering every week for about six years. <br /><br />Last night a reporter asked me what is so special about Equestrian Therapy... how is it different from other activities. My answer came without hesitation... for an hour a week Gavin doesn't have a disability.<br /><br />Please help families like ours keep these services.SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com2tag:blogger.com,1999:blog-8603019492048959739.post-72596832959450296492009-08-08T17:12:00.000-07:002009-08-08T17:15:11.267-07:00Meeting Friends at NDSC Convention of all ages<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicnXgFsc8attqPD2_8eUEUq21it-mJbihJtjDy3WEc1K1wAHmhBhDOAMyqzykJkPZ3KPd-_tPjYgUhUdOsA8pxN9kpCuiYMQTFPTa7KIoGKoWbBub4o2iv00SeC097Izkm5SOjJTvMsZVj/s1600-h/100_3636.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicnXgFsc8attqPD2_8eUEUq21it-mJbihJtjDy3WEc1K1wAHmhBhDOAMyqzykJkPZ3KPd-_tPjYgUhUdOsA8pxN9kpCuiYMQTFPTa7KIoGKoWbBub4o2iv00SeC097Izkm5SOjJTvMsZVj/s320/100_3636.JPG" alt="" id="BLOGGER_PHOTO_ID_5367750369421470130" border="0" /></a>Out on the exhibition show floor we got to meet so many people. There was a huge play area, toys, bikes, swings, educational materials, books, art, shirts and so much information. It was great to fill our bags with goodies and share stories.SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-55830341403107280622009-08-08T17:10:00.001-07:002009-08-08T17:12:23.953-07:00Dancing at NDSC<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD3bpxAbPKARsSB96zp0Dg4SER5939dXiFBUqWZjSPAlxd_8WnHMwpJvJVPrP2zdi2EH5kQz7sEuM7YjQk_0HwUiB7_lSh0RVzUP6FloI0Wy7VbbQCha6NZ_psQ0d1Enktt8BBeXryRwFz/s1600-h/100_3664.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 213px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhD3bpxAbPKARsSB96zp0Dg4SER5939dXiFBUqWZjSPAlxd_8WnHMwpJvJVPrP2zdi2EH5kQz7sEuM7YjQk_0HwUiB7_lSh0RVzUP6FloI0Wy7VbbQCha6NZ_psQ0d1Enktt8BBeXryRwFz/s320/100_3664.JPG" alt="" id="BLOGGER_PHOTO_ID_5367749947219762034" border="0" /></a><br />There is my handsome man shakin' it on the dance floor! Gotta love this cutie!SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com2tag:blogger.com,1999:blog-8603019492048959739.post-36999014071322690882009-08-08T17:04:00.000-07:002009-08-08T17:25:28.866-07:00NDSC Convention<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdAN-rkX-pAK-Gs-P60jQlBUAK1PXf14qK5bJkzRHThNJgv3yQdSQ14LiI79UnIbrj6wci6mg3I87nIMlx9CmzILmovG7twam6Wa3O9peHXDczRgZQeg3ejNpOKBaen5HUDSorQMxgpKmW/s1600-h/100_3656a.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 214px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdAN-rkX-pAK-Gs-P60jQlBUAK1PXf14qK5bJkzRHThNJgv3yQdSQ14LiI79UnIbrj6wci6mg3I87nIMlx9CmzILmovG7twam6Wa3O9peHXDczRgZQeg3ejNpOKBaen5HUDSorQMxgpKmW/s320/100_3656a.jpg" alt="" id="BLOGGER_PHOTO_ID_5367748675348454978" border="0" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTWfsxzUqk5yMSyF31-Ul7YaaodczKt5Nl1YOsSZ_MqrIbPbfgdLJbshLdG1QN0t7gUJer4UGt-ZAMezP4hDME2f_rs-fjnjq4KLpk8p-p6DGzBTbNcGrisl4NvvkBlk7DLiVRsC58KZVa/s1600-h/100_3666.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTWfsxzUqk5yMSyF31-Ul7YaaodczKt5Nl1YOsSZ_MqrIbPbfgdLJbshLdG1QN0t7gUJer4UGt-ZAMezP4hDME2f_rs-fjnjq4KLpk8p-p6DGzBTbNcGrisl4NvvkBlk7DLiVRsC58KZVa/s320/100_3666.JPG" alt="" id="BLOGGER_PHOTO_ID_5367748545690060306" border="0" /></a>NDSC Convention was amazing. It was so fun to finally get all dressed up and go to the banquet. The room was packed with people just like us. That night we dined with over 900 friends. There are some tremendously talented people working to create a better tomorrow for people with DS and many of them were honored with awards. Then after super food and lots of applause everyone went jiggy on the dance floor. My little man and his two older brothers looked so handome -- really I could not be prouder of the trio! It was a fine evening.<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3woaYsGADkc9Mp50xZw_bTeJ36K2vM5Zh6XOWtpfBJ1UyeJonTiDPW_H9PEhj7aiM-f6-HnAfhuV2U0EfcCoRS9TncmB-Sasnk-RkAohfK2sANE27-CVotuqkU-6oO2ceSUJCvQ-nHK0p/s1600-h/100_3659.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh3woaYsGADkc9Mp50xZw_bTeJ36K2vM5Zh6XOWtpfBJ1UyeJonTiDPW_H9PEhj7aiM-f6-HnAfhuV2U0EfcCoRS9TncmB-Sasnk-RkAohfK2sANE27-CVotuqkU-6oO2ceSUJCvQ-nHK0p/s320/100_3659.JPG" alt="" id="BLOGGER_PHOTO_ID_5367753398889641442" border="0" /></a>SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0tag:blogger.com,1999:blog-8603019492048959739.post-60359964809211085622009-07-23T21:05:00.001-07:002009-07-23T21:31:12.715-07:00Tough Day<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkHGJja4Q-W9IKkIn64u4rvMQ1t3kZLLGI3iuZ2V8uw46fEWRzDO4HdkJu0XUouCC3vC270WryiT4bOBbFe6t_BYYrvU1aqVA0JalHiZTHpvfV-6Wwk-4qZGWWqcrn5oBDw4MJmWOyc3Ub/s1600-h/100_1407.JPG"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkHGJja4Q-W9IKkIn64u4rvMQ1t3kZLLGI3iuZ2V8uw46fEWRzDO4HdkJu0XUouCC3vC270WryiT4bOBbFe6t_BYYrvU1aqVA0JalHiZTHpvfV-6Wwk-4qZGWWqcrn5oBDw4MJmWOyc3Ub/s320/100_1407.JPG" alt="" id="BLOGGER_PHOTO_ID_5361879437594385106" border="0" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiL3sskGmIfenAKbVrwAcoQ8yZgE47Aj7octb2CLrgKHOG7xeLMU9gPYX8o61BSxDIYa-9GVOKxtn3JLakTmhQnhfU2VtfQvyjILsVbNu_C3MJPRBod_VG4mi7rM5QE3jUZP4QaHqf0-ioQ/s1600-h/100_1412a.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 214px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiL3sskGmIfenAKbVrwAcoQ8yZgE47Aj7octb2CLrgKHOG7xeLMU9gPYX8o61BSxDIYa-9GVOKxtn3JLakTmhQnhfU2VtfQvyjILsVbNu_C3MJPRBod_VG4mi7rM5QE3jUZP4QaHqf0-ioQ/s320/100_1412a.jpg" alt="" id="BLOGGER_PHOTO_ID_5361878919164724082" border="0" /></a><br /><br /><br /><br />We are home now and resting. Our day started about 5 a.m. (who am I kidding... I didn't sleep!) and surgery began at 7:30 a.m. You know you are becoming too familiar with the routine when you put on scrubs and escort your baby into the surgical suite. Still I respect this team so much for honoring my son's comfort and giving me the peace of staying with him until he is gently sleeping. Then the waiting begins. That's the hardest part, watching the clock and every time the doors swing open you look for a familiar face to bring news. Will it be successful, have we bought some time, have we waited too long? News finally comes. A lot of stuff in his ears and a totally collapsed eardrum; it is sucked in and immobile. The surgeon spends 20 minutes just freeing up the eardrum. The t-tubes don't fit, so we have to try the grommet tubes again and the surgeon hopes the eardrum will reanimate but he is guarded and he begins talking about the next surgery where he will attempt to drill the bone. I shut my eyes, block out the information, because today I can't hear it. Today I want to be optimistic and I want to go hug my little boy. In recovery he is having a hard time waking up and he is in tachycardia. His heart is racing up above 148... he keeps scrunching his face but he looks good and his sats are good. I talk to him and his heart slows a little, then he scrunches and it is back up again. This goes on for a while; I'm not sure how long and then there is a smile and a..."love you."SuzeBeeBloghttp://www.blogger.com/profile/08057337796682807066noreply@blogger.com0